iamjoethornton Posted September 28, 2015 Share Posted September 28, 2015 This is fairly depressing so you might not want to read it. My wife and I are quite private but after our daughter named Bellamy (yes, named for Matt's last name) passed away because of Spinal Muscular Atrophy we feel it is right to raise awareness in her name. Our beautiful baby girl is at peace but there are many children and their families fighting this horrible disease. It is the #1 genetic killer of infants in the US and I had never heard of it until our daughter was diagnosed. If you are interested in reading our story please click the link and go to page 69. http://www.curesma.org/documents/research-documents/voices-of-sma-complete.pdf All I ask is that you think of baby Bellamy once in a while and if you ever feel like taking action CureSMA is a wonderful organization to support. Thanks everyone. Link to comment Share on other sites More sharing options...
Gemsy Posted September 28, 2015 Share Posted September 28, 2015 (edited) I'm so sad to hear, Bellamy's Dad; I remember your original thread about Bellamy (which is here, everyone) and have thought of you often since I read it. I'm so sorry for the loss of your beautiful little girl. I've just read your story on page 69, and my heart is breaking for you both. I am going to donate to CureSMA as soon as I get paid. Much love to you and your wife, and all your loved ones. Edited September 28, 2015 by Gemsy Link to comment Share on other sites More sharing options...
Buxomflirter Queef Posted September 29, 2015 Share Posted September 29, 2015 I remember the original thread. I'm so sorry about your little girl Link to comment Share on other sites More sharing options...
Caro_H Posted September 29, 2015 Share Posted September 29, 2015 I am so sorry for your loss. Bellamy sounds like she was the most beautiful little one. I am glad that you found moments of joy with your girl, even through the heartache. Much love to you, your wife and all your family. Link to comment Share on other sites More sharing options...
Ev1980 Posted September 29, 2015 Share Posted September 29, 2015 That is really heartbreaking, I wish you and your loved ones all the best Link to comment Share on other sites More sharing options...
matthijs Posted September 29, 2015 Share Posted September 29, 2015 I'm sorry to hear that Link to comment Share on other sites More sharing options...
Johi36 Posted September 29, 2015 Share Posted September 29, 2015 I'm very sorry for your loss. Link to comment Share on other sites More sharing options...
Uccellino Posted September 29, 2015 Share Posted September 29, 2015 I'm sorry for your loss, I saw the photo you posted of Bellamy, she was a beautiful little girl x Link to comment Share on other sites More sharing options...
Hyper Posted September 29, 2015 Share Posted September 29, 2015 I feel very sorry for your loss, I am sure her soul went back to the stars Link to comment Share on other sites More sharing options...
Mattestro Posted September 29, 2015 Share Posted September 29, 2015 I remember the original post and often thought of you guys Thoughts are with you guys Link to comment Share on other sites More sharing options...
altbecky Posted September 30, 2015 Share Posted September 30, 2015 There's no words. I'm sorry for your loss Link to comment Share on other sites More sharing options...
Mc Queen Posted September 30, 2015 Share Posted September 30, 2015 I also remember the original thread, I'm so sorry she's no longer with you Eddie Link to comment Share on other sites More sharing options...
maturefan Posted September 30, 2015 Share Posted September 30, 2015 I am so sorry for your loss. Link to comment Share on other sites More sharing options...
hipbones Posted September 30, 2015 Share Posted September 30, 2015 I am so sorry for your loss x Link to comment Share on other sites More sharing options...
Alexander DeLarge Posted October 4, 2015 Share Posted October 4, 2015 Saw the original thread. My condolences. I'll be supporting the organization around tax season, because like you, I haven't heard anything of this condition. Link to comment Share on other sites More sharing options...
Rudderless Hippy Posted October 5, 2015 Share Posted October 5, 2015 So sorry for your loss xx Link to comment Share on other sites More sharing options...
panikstacey Posted October 11, 2015 Share Posted October 11, 2015 I know I'm very late with this but poor Bellamy. May she rest in peace. I'm sorry as well for your loss. Link to comment Share on other sites More sharing options...
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