My daughter Bellamy passed away because of stupid SMA

[iamjoethornton]

This is fairly depressing so you might not want to read it. My wife and I are quite private but after our daughter named Bellamy (yes, named for Matt's last name) passed away because of Spinal Muscular Atrophy we feel it is right to raise awareness in her name. Our beautiful baby girl is at peace but there are many children and their families fighting this horrible disease. It is the #1 genetic killer of infants in the US and I had never heard of it until our daughter was diagnosed. If you are interested in reading our story please click the link and go to page 69.

 

http://www.curesma.org/documents/research-documents/voices-of-sma-complete.pdf

 

All I ask is that you think of baby Bellamy once in a while and if you ever feel like taking action CureSMA is a wonderful organization to support. Thanks everyone.

[Gemsy]

I'm so sad to hear, Bellamy's Dad; I remember your original thread about Bellamy (which is here, everyone) and have thought of you often since I read it. I'm so sorry for the loss of your beautiful little girl.

 

I've just read your story on page 69, and my heart is breaking for you both. I am going to donate to CureSMA as soon as I get paid. Much love to you and your wife, and all your loved ones.

Edited September 28, 2015 by Gemsy

[Buxomflirter Queef]

I remember the original thread. I'm so sorry about your little girl

[Caro_H]

I am so sorry for your loss. Bellamy sounds like she was the most beautiful little one. I am glad that you found moments of joy with your girl, even through the heartache.

 

Much love to you, your wife and all your family.

[Ev1980]

That is really heartbreaking, I wish you and your loved ones all the best

[matthijs]

I'm sorry to hear that

[Johi36]

I'm very sorry for your loss.

[Uccellino]

I'm sorry for your loss, I saw the photo you posted of Bellamy, she was a beautiful little girl x

[Hyper]

I feel very sorry for your loss, I am sure her soul went back to the stars

[Mattestro]

I remember the original post and often thought of you guys

Thoughts are with you guys

[altbecky]

There's no words. I'm sorry for your loss

[Mc Queen]

I also remember the original thread, I'm so sorry she's no longer with you Eddie

[maturefan]

I am so sorry for your loss.

[hipbones]

I am so sorry for your loss x

[Alexander DeLarge]

Saw the original thread. My condolences.

 

I'll be supporting the organization around tax season, because like you, I haven't heard anything of this condition.

[Rudderless Hippy]

So sorry for your loss xx

[panikstacey]

I know I'm very late with this but poor Bellamy. May she rest in peace.

 

I'm sorry as well for your loss.